Archive for February, 2009

February 22nd 2009

Bed and Morphine…

Friday was an eventful day.  Finally our bed was delivered!  We have had two nights of amazing sleep!  I can’t tell you the difference this bed has made!  

On Friday, my family arrived about 2 o’clock.  I was in so much pain that I called the doctor and after discussing it, they decided to put me on a slow release morphine pill with the option of taking codeine for breakthrough pain.  I think it is helping.  

It has been nice having my family here.  Yesterday, my parents went and picked up my grandma.  It was good to spend time with her and have her here visiting.  

We also really appreciate all of the dinners that people are bringing!  It has been an amazing blessing!  Thank you so much!

Well it’s late and I think I hear my bed calling!!!  I think it’s always calling.  Today I took a nap and woke up at 6.  I thought it was am not pm.  I was so confused and couldn’t figure out why everyone was already up. It took a few seconds to realize it was 6 pm.  Now that’s some good sleep!  

God Bless,

Monica

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February 18th 2009

A bad day…

Today was a really painful day.  I don’t know what brings it on, but for about two hours I couldn’t sit, lay down, stand up or anything. I thought someone was going to call the police because I was screaming so loudly from the pain – if you can imagine that.  I was home by myself and didn’t know what to do. I don’t know why I didn’t want to take the pain medication.  I guess I hate medication that much.  “It’ll go away” I kept telling myself.  Well it did go away, but it came back and then I took the pain meds.  Why didn’t I take them earlier – I will next time! 

We also heard about the bed.  After calling to cancel our order, we finally heard from the salesman. The mattress should be here tomorrow evening!  I don’t know whether to get excited about that or not.  I’ve heard it before.  I’ll let you know!  🙂

Anyway, I just wanted to let you all know how today went, and to ask for prayer for pain.  I try to be so strong, thinking I can just deal with it, but I need to recognize that sometimes I can’t.  

Thank you,

Monica

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February 17th 2009

More Mattress Issues!

Apparently, after talking to someone at headquarters for this company, they have no idea when the mattress will be in so they can’t quote us a delivery date!  This is so frustrating!  I never thought it would take long to get a mattress.  Apparently they make each one as it’s ordered, so we’re waiting.  In the meantime, Sol has been on the phone with other companies trying to get answers and maybe a faster delivery time.  We’ll see.  For now, we pray for good sleep and a positive outcome to this saga!  Thanks.

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February 17th 2009

Mattress Issues!!!

Please pray for our bed issues to be solved!  First we were told that it would be delivered on Monday, then they call and say because of the holiday, it will come on Tuesday.  We called today, now they are telling us it is on back order!!!  The man who sold us the bed was supposed to call us and let us know the status of everything!  We are the ones calling him and he isn’t answering!  I am so frustrated!  I haven’t been sleeping well and want this bed so badly.  I slept part of the night on the couch last night because of pain!  I was in the mattress store trying to figure all of this out and I lay down on the bed we purchased and I could have lay there all day!  It was like a giant hug!  We are trying to find a store nearby that has it in stock, and then we’ll cancel the transaction with this other store!  

Anyway, pray that this all works out and that I am able to get some sound sleep.  

Monica

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February 16th 2009

February 17th, 10:00 am CBS

In the beginning of January, Dexter Middle School Teachers attended a taping of “The Price is Right” and one of our own won big.  It is airing tomorrow, the 17th.  We should be on it a lot since she went so far and was so dramatic!  It’s going to be fun to watch!  🙂

In other news, I was able to attend church on Sunday for the first time in a month.  My energy was good, and it was nice to get dressed!  🙂  It wore me out, but it’s a start!  Today was a pretty rough day.  I have been trying to eat more and today I overdid it!  I ended up throwing up after a few hours of pain and then I felt better.  A few nights ago, Valentine’s Night, I ate too much chocolate covered fruit (So delicious) and paid for it for a few hours.  I need to be a little wiser about listening to my body.  The fevers continue (more so at night) and my voice is gone.  We were expecting our bed today and got a call saying because of the holiday, it won’t be delivered until tomorrow night.  I am so upset about that.  I have been dreaming about this bed – no seriously I have!

Well, I am going to go for now!  See you on “The Price is Right”!  🙂

Monica

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February 14th 2009

Happy Valentine’s Day!

Today is Valentine’s Day, and I am feeling pretty well.  I am still very, very tired, but am not currently in any pain or coughing so much.  Fevers are still around, but I actually feel I may have enough strength to leave the house – maybe!  I can’t believe how much strength I’ve lost.  I have always been a very strong person, now I can’t even lift Kai onto my lap without great effort.  I need to start trying to gain that strength back, but all I want to do is lay in bed and rest. Pray for motivation, but that I don’t overdo it!  I tend to go too far!

On Thursday,  I had the most amazing dark chocolate covered strawberries!  It was better than taking any codeine, aleve, or other pain reliever!  It’s amazing what chocolate will do to a woman!  Anyway, I can’t wait to have more! (hint, hint)!  

I wish you all a very lovely Valentine’s Day full of the knowledge that you are a precious child of God who cherishes and loves you deeply!  

Much love and blessing to you all,

Monica

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February 12th 2009

I survived!

So I went and had the shot.  It is A LOT like the Neulasta shots for white blood cells I had before. It’s a long stingy shot in the back of the arm.  They told me to expect some bone pain – which is the worst – but if it hurts, it’s working!  So far I haven’t had any bone pain, but I do have back pain that I believe is mostly muscular and nothing to do with the drugs and such.  

Please pray that there will be no coughing tonight, and Kai will have a peaceful sleep. 

I don’t think we mentioned this…we decided to get a new bed!!!  I am so excited.  It should be delivered either Saturday or Monday.  Since I’m spending so much time in bed, we decided to splurge and get the most comfortable bed we could find!  Now I’ll never leave it!  😉  

Thank you for your prayers and your encouragement as I faced something new today.  It is always scary!

Love,

Monica

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February 12th 2009

So Scared…

I don’t know why, but this Procrit shot is scaring me a lot.  I guess because I don’t know what to expect, and even worse than the shot, I don’t know what side-effects to expect.  Someone told me last time, if it hurts in your bones, it’s working so rejoice. (That was for the white blood cell shot.  This is a red blood cell booster.)  Hmmm… interesting perspective.  I really do hope this give me more energy.  Right now, I am just sitting around the house all day napping on and off.  Don’t get me wrong, it’s nice, but I don’t even have the strength to DO anything else.  No matter how long I sleep, my eyes are always half shut.   

I’ll let you know how it goes.  Last night was attack of the killer cough about 1:30, and then dinosaurs in Kai’s bed around 5:00.  Sol isn’t getting any sleep, please pray for him.  Alright, time to go.

Monica

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February 9th 2009

Just an Update…

To put it briefly, this has been a very emotionally difficult week.  When the doctor tells you that there is nothing he can do for the fever and cough you suffer from, it takes it’s toll – physically and emotionally.  It is the strangest thing, between the hours of 4-7 I get a fever of about 102.0.  Nothing seems to help, but we still take the tylenol.  The cough doubles me over in pain and my back and sides have had enough.  The appetite stimulator doesn’t seem to be doing anything – I’m still not eating much.  I’ll go 5 days constipated and then three days of diarrhea.  Each day has been a copy of the day before.  I take the Nexavar now at 8:00 am and as close to 8:00 pm as I can. 

It was good having Martha here for those few days.  She helped around the house a ton and was available for whatever I needed.  Thanks, Martha.  My parents are coming to visit on the 20th for a few days, and my sister (+baby) will come with them and leave a week later.  

The big news here is that Sol finally set up our 50″ plasma TV.  We’ve had it since December, but thought we’d be moving so never set it up.  For his birthday, Sol bought himself and X-Box 360, so he was motivated to set up the TV.

So I said this has been an emotionally difficult week.  I mean it.  It is so hard to fight each and every day.  One day, I just said to the Lord, “Heal me now, or take me quickly.  I can’t take this anymore.”  But then I begin praying for the strength He seems to think I have to fight this.  “He never gives us more than we can handle”.  Hey, Mom, remember when I’d punch Janelle for no reason and get in trouble for it? – Here’s that fighting spirit (ok, so it’s totally not the same)!  🙂  It was good having Martha here also because I wasn’t alone with my thoughts.  It’s so easy to think the worst especially if all you’re feeling is the worst.  Please pray for my thoughts and fighting spirit.  

It goes without saying that I married the best man alive.  Let me paint you just one small picture.  Last night when trying to lay down, I had so much pain it must have looked and sounded like I was possessed or something.  I threw my body in convulsions to the side trying to relieve the pain.  Sol, terrified for me, waited until I asked for his help.  Unfortunately, I’m a Lepper girl and we don’t ask for help easily, but I did.  The codine hadn’t kicked in yet, but I was trying to get to bed.  I was so humbled by his patience and gentle care.  He put his arms around my whole body and just said, “Relax, I’ve got you.”  I felt safe – still in pain but not as scared of it.  My body was crooked, and he wouldn’t let me move a muscle.  “Let me do it,” he said.  So I let him and he did.  He gently lifted my hips and with no additional pain he moved my body.  In that small moment, the love of my husband wrapped all around me, and I felt peace.  The codine started kicking in, and I knocked out.  He feels really terrible that I’m feeling this way, but he feels good being able to do something to help this once Lepper girl. The love of my life!

Oh last thing…I have a CT scan scheduled for March 2nd at 9:00 am.  I’m going to try to change the time to a little later so that I can keep the Nexavar on schedule.

Thank you for the encouragement posts and comments, I read them all.  They inspire me and bring my heart joy and tears to my eyes.  I miss so many of you and wish you could all be closer.  

Love,

Monica

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February 3rd 2009

Dr Appointment Results

I was a bit frustrated by the doctor’s appointment this morning.  I was told that there was really nothing that they could do to help with the fevers and cough.  I just have to manage and fight.  He said that the cough could be irritation from the tumors making me cough – not too much I can do about that, eh?  I don’t have any fluid in my lungs, so that is good, but this cough is keeping us up at night and wearing me down, down, down.

My blood tests showed that I am a little anemic, so I will be having shots to boost my red blood cells weekly beginning next week.  Hopefully it will give me more energy.  I’ve never had one of these shots, so I am a little afraid.  I’m set to have them for five weeks and then check it again.  Before the five weeks is up, I’ll also be having a CT scan.  It is not set up yet, but will be soon – I’ll let you know!

I also have not had much of an appetite – lost 7 pounds – so the doctor prescribed Megestrol Acetate to stimulate my appetite.  I hope that by eating more, I’ll have more energy.  It is supposed to be Lemon-Lime flavor, so hopefully it’ll go down smoothly.  We’ll find out tomorrow!

Please pray for rest and sleep.  Sol and I both need sleep.  Kai is doing awesome!  He continues to go in the potty and sleep through the night!  Martha (Sol’s step-mom) is coming tomorrow.  She said she woke up this morning and just needed to be here.  So here she comes.

I’m praying I wake up tomorrow with NO cough!!!  It can happen!

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