SolandMonica.com

On Monday, I started feeling pain in my right side.  I called the doctor, and he confirmed that it was most likely my liver hitting my ribs.  I am so worried that in the 3 weeks that I haven’t had any treatments, the tumors are growing out of control.  They have grown so fast in the past, so I know how aggressive they are.  I began taking codine to manage the pain a little bit.  Last night, I couldn’t even lay down.  I slept in the recliner, and at 2:00 am, once the codine kicked in, I slept well.  

The authorization has been turned in for the Nexavar, and now we wait for the HMO to get back to us.  We looked into getting it right now – not waiting for authorization- but it’s $6,000 a month for 120 pills.  Hopefully authorization will come through today or tomorrow.  Please pray that authorization comes through quickly, and we can start treatment this week.  I dread every day I’m not being treated.  In looking on the internet for clinical trials, I was once again faced with the statistics of survival.  I have already outlived half of patients diagnosed with angiosarcoma at 18 months.  The five year survival rate is only about 15%.  That starts the lump in my throat and the tears in my eyes.  I am by no means giving up, I’ve too much to fight for!  It just shows me how hard I need to fight!

Sol has been sleeping better, and Kai is having a blast in Fresno with his grandparents, aunts, uncles, cousins and new friends.  We were able to talk to him on the webcam last night.  He was laughing and having a blast seeing himself on the computer.  He even kissed the monitor to say goodbye!  Sometimes I just need a Kai hug!  How we miss him! However, I slept until 9:30 this morning!  That’s not going to happen when he’s back home!  So I’ll enjoy this time, but look forward to holding him in my arms again.  We know he’s having a great time with people who love him.  I guess today he was going with Tio Rico to see the dinosaurs at the Fresno MET.  Hopefully that will go well.  Sometimes he thinks dinosaurs are the coolest things, and other times he thinks they’re too scary.  Which one will it be today?  Good Luck, Rico!

I have a wonderful story to tell of God’s provision.  I recently reconnected with a friend from high school.  She married a guy a year ahead of us in school who’s high school friend is a pathologist who works for Bayer Pharmaceuticals and Bayer makes Nexavar!  How’s that for timing?  He just sent me a bunch of information about the drug.  God is amazing, and His timing is perfect.  

Thank you for all of your prayers and encouragement.  There is going to be an opportunity to help us financially.  Sol’s cousin’s girlfriend’s parents (did you get the connection?) have a t-shirt company and are willing to donate all the proceeds of a t-shirt sale to us.  We just have to design a t-shirt to sell.  So all of you creative folks start thinking and designing!  I hope to have more details soon, which I’ll pass onto you!

Much Love,

Monica

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