February 2nd 2009
Doctor Tomorrow…
Well tomorrow is the first appointment I’ll have with my doctor since beginning Nexavar. We have talked to him and his nurse practioner on the phone often, but I am anxious to see him and tell him everything that has been going on. It’s times like these that I wish I were better at writing things down when they happen. I’ve been having a fever every night around 5 or 6 o’clock still, and it just wipes me out. I have a cough that doesn’t stop, and it wipes me out. I don’t know if either of these effects are related to Nexavar at all. I am hoping to get some huge antibiotic shot in my butt and have this all over with! I’ll take that over these past three weeks of suffering any day!
Hopefully tomorrow we’ll set up a CT scan for the following week to see what’s been going on behind the scenes in my body! I want to know if this is working. I don’t know if it’s too soon to tell, but I’d like to know. I might have to wait another month.
Some exciting news is that Kai went to school today in the same chonies he came home in! 🙂 No accidents today! That’s 2 days so far! He likes being like Dadoo – wearing chonies, standing up, keeping his chonies dry and going big poop on the potty! He’s doing great; let’s hope it continues!
He continues to be so full of imagination. Yesterday all of us were characters from “Little Einsteins” all day long! He would call us by those names, and we would go on missions. It was so cute! He had a pretend “batime” (baton) that he would conduct with. So adorable.
Thank you for your prayers as I go to the doctor tomorrow. Pray that they’ll find a solution to these bothersome effects I’ve been having (even if it’s some HUGE shot). I am done being this sick. Many people have been telling me that since I tolerated the other chemos well, and they didn’t work; maybe the fact that I’m getting really sick means it’s finally working on me. Here’s hoping in that miracle and the One who holds the miracle in His hands!
Much Love to you all,
Monica

