Archive for the 'Cancer Update' Category

July 25th 2008

With the rise of the sun…side-effects begin

I slept alright last night, but woke up this morning (at 6 thanks to Kai) to diarrhea, and then a rash, gas, and now shortness of breath.  All of which they said would be possible side-effects.  One weird one is on the back of my right arm.  I have a spot that is pretty hot to the touch, but I don’t have a fever.  It has been a pretty terrible morning.  From the best day of the week to…well I guess Wednesday is still the worst day of my week, but this ranks up there.

Please pray that these symptoms go away soon and don’t get worse.  I have to call the doctor in a little bit to let him know how I’m doing.  The major concern I have is the shortness of breath.  I can’t take a deep breath and that is scary!  I know that the avastin constricts all the blood vessels, but it’s still not very comforting knowing that it may happen when it is actually happening.

Thanks, I’ll keep posting, but need your prayers as this first treatment seems to be worse than the whole first chemos I went through.  I know that it gets progressively worse, so that makes it harder to walk through those doors next Thursday.

Monica

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July 24th 2008

Chemo 2 – 1 Treatment Down

I am happy to say that chemo went super smoothly.  No trouble finding a vein (although it was in a weird location on my arm), no reaction to the drugs and not too much nausea tonight.  The only strange thing was that when the Taxol was going in, I could taste it.  Luckily, they had some Lifesavers I could suck on.  They really earned their name today in my book.  I have a bit of pain from the Port Placement, but that’s about it.  I am tired and heading to bed here pretty quick, but just want to let you all know that today has actually been the best day of my week so far!  Hard to believe, but true.

Tonight was the Concert in the Park and our church band played a mix of songs, mostly U2 type songs.  It was nice to go out and see so many familiar faces, but I think I may have pushed it just a bit.  Mostly I just sat there while Sol and his mom chased Kai around, but even that might have been too much.

I guess I just don’t want to admit that I have cancer.  I can still do it all, right?  I just sit here praying that the chemo is attacking these darn tumors as I’m typing or doing whatever it is at the moment.  I talked to the oncologist today and asked him about treating the 4 cm tumor in my liver and then starting chemo, but he said that it is already too big for the less invasive surgical treatments, and that he really thinks that this chemo is going to shrink it enough to get it out with clear margins in a less invasive surgery.  I pray he’s right.  He is going to refer me to a liver surgeon so that I can talk to him about my choices.  I think that might make me feel better.

Anyway, I am doing ok.  I don’t have anything until Monday when I am supposed to have a lymphedema appointment.  I asked if that was ok and the doctor said yes since my tumors are not in the lymphatic system.  I think I have to wear some big foam arm-squisher thing for two weeks and then a compression sleeve.  There isn’t too much swelling, but they want to treat it now, so that there never is much swelling.

On Tuesday, I’ll be heading to Long Beach Memorial for follow-up with the stitches and dressings.

On Wednesday, I’ll have blood drawn, hopefully through the Power Port, if I get clearance on Tuesday.

On Thursday, more chemo.

Thank you for all of your encouragement, emails, support, hugs, dinner volunteering, babysitting, ride-giving, phone calls, text messages, and sincere concern.  You all have been so wonderful!  I cry and smile reading everything you all write.  I received a package FULL of cards and notes from Sol’s brother, Diego’s, church family.  It really touched me to receive such wonderful notes of encouragement from kids and their families who don’t even know me.  There are many who write whom I’ve never met and that is so hard to believe.  I don’t know why I’m having to go through this, but sometimes there are glimpses of how God is using this to touch so many lives.  It is then that I feel as though there is a reason for all of this yuckiness.  The Lord knows what I can handle, I think He’s really pushing the line sometimes, but I am still smiling and taking it one day at a time.  That’s all I can do some days – just fall asleep at the end of the day and take the next one as the sun rises.

Well this became longer than I had expected, but thanks for reading and listening to my heart.  I love you all with every fiber of my being.  This site has become a lifeline for me and a wonderful way to connect to so many of you!

Thank you and God Bless,

Monica

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July 23rd 2008

Home at Last!

I have a Power Port!  Today ended up being much longer than I thought that it would be – 7 hours instead of 5 at the hospital!  I am home now and doing just fine.  I feel a little stiff, but I think that’s because I don’t want to move too much.  I am afraid that I will do something wrong and it will all come apart.  Silly, I know, but true none-the-less.

Overall, I am feeling well.  I am a bit tired and will be going to bed soon, but am thankful that this part is over and that I will only have to be poked one more time (tomorrow) before using the port.  The port takes a week to “mature”.  It will not be ready tomorrow.

If you want the details of today – keep reading,  if you don’t – skip to the end!

The whole reason that I am getting the port is because my veins are becoming harder and harder to find.  This was truly evident when they were putting in the IV.  It was really painful and continued to be painful for the next 6 hours until it was taken out.  There was blood all over my arm after she put the IV in, and it didn’t get washed of until I got home.  They wheeled me into the room and I laid there watching them get everything ready.  I can’t have anything done to my right arm (like blood pressure, blood draws and IVs) so they put the blood pressure cuff on my leg.  When it squeezed my calf, it felt like a Charlie Horse and I was screaming.  They did it twice and then just put it on my left arm with the IV…not ideal, but definitely better than my leg.  I wasn’t put all the way out and don’t think that they gave me enough medicine.  I could hear and feel everything.  The doctor had to put a nick in my neck to feed the tube in, and when he did he said “Uh Oh.”  Not too comforting.  I could feel blood running down my neck!  Yuck!  Then when he made the hole for the Power Port, he said, “I tore a vein.”  I could feel pain and asked for medicine multiple times.  I think they may have ended up giving me too much as I was in recovery for a long time.  While in recovery, I asked for pain medication.  They have a new computer system at the hospital, which everyone was complaining about, and I had to wait more than 20 minutes to get any sort of pain killer.  Then it wasn’t enough, so they gave me more.  Anyway, that computer system really is bringing things to a halt over there.  It has only been a week and they’ll probably get faster, but when you looked around, all the nurses were on the computers trying to find where to input stuff and many patients were waiting around.  I would have been discharged sooner, but they couldn’t find where to print my discharge papers.  My friend, Keri, was told about 4 times that I would be ready in 30 minutes…she waited 3 hours just to see me!

It was a really frustrating day at the hospital, but it’s over and we’re moving on.  I start chemo tomorrow morning.  I am scared and nervous.  Sol’s mom comes in tonight and will be there with me tomorrow.  It will take about 3 1/2 hours pending it all goes smoothly!

Your prayers are so desired and felt!  I know that the Lord is in control of everything, and it is only through His strength that I get through each day doing what I must.

(Um, I just puked, need to go to bed.  Maybe, I’m not feeling as well as I thought I was!)

Love,

Monica

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July 21st 2008

I have a Power Port appointment!

Well, today was a really long and trying day! But in the end, we can celebrate. I’m getting the Power Port!

After waiting for my doctor’s office to call me about the authorization, I finally called them. The authorization to change facilities had gone through, but it hadn’t been sent to the hospital yet and no one had called me to let me know. She said she would fax it right away to the hospital and then they would call me with an appointment time. I waited about 30 minutes and then called the hospital myself. The scheduler wasn’t there when the doctor’s office called, so she didn’t even know that they had faxed the authorization. She got the auth and set me up for the appointment right there on the phone. If I hadn’t called, I might not have heard anything today. It is so frustrating to have to keep on top of everything, but I guess necessary to keep things moving.

I’ve heard that you need to be on top of things and be your own advocate many times, but can’t it ever be easy and right the first time??? I can imagine many people would just accept what is told to them and that makes me sad because they aren’t getting what they deserve and sometimes need!

So, my appointment is at 10:00 on Wednesday morning. I am so glad to have the appointment, but it is on the ONLY day that I had anything planned ALL summer. I was going to be heading to Angels Stadium for a mid-day baseball game. I won tickets at the Relay for Life back in June, and now I can’t go. I’m bummed! Instead I’ll be at the hospital for approximately 5 hours. I’ll get over it eventually! 😉

A friend told us that we are “Rolling with the Punches” to which Sol replied, “Yeah, but we’re getting pretty beat up.” That’s pretty much how we feel, but our God is bigger than this trial, and He will carry us through! Thank you for all your prayers. Things are moving in the right direction and I know that your prayers have played a major role!

Love,

Monica

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July 19th 2008

Going Home and Port Appointment

Well, what a wonderful surprise…my sister, Karen, flew out from Washington, D.C. on Thursday night!  It was fun to have everyone together.  We are both going to be heading home tomorrow (Sunday). 

I will be having a port put in on Monday at 9:30 am.  I am really nervous about the whole procedure and don’t know really what to expect.  I am not sure when chemo will begin and haven’t heard if the anti angiogenesis drug (avastin) has been approved or not.  Sol did some research on Taxol and found that it has a history to be effective in treating angiosarcoma.  That is such great news.  I also found out that one of the side effects will be losing my hair again.  I just got it back!  🙁  But, hey, if that’s the worst of it, then I’ll take that.  I have enough hats to last a long time!  🙂 

Thanks for your prayers and support as I begin a new battle this week.  I really appreciate everything everyone has done for us! 

Love,

Monica

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July 16th 2008

Starting It All Again Next Week

Well, the doctor called me today after talking to the sarcoma specialist at Cedar’s Sinai.  I will be starting everything next week.  I spoke to him at length this evening about a lot of things, but will give you a brief description tonight as I am really tired.  (Kai was up at 5:30 this morning) 

Well, I will be having a port put in the beginning of next week as chemo will be every week this time, and my veins are already running at the thought of more needles.  I will be receiving Taxol once a week for three weeks and then have a week off and then three weeks on and one off for a few cycles.  Then they will do another scan to see if the chemo is working.  He wants to do Taxol in combination with an anti-angiogenesis (inhibits new blood vessel growth) drug.  Please pray that the HMO approves the drug as right now it is not used for this kind of cancer, and it is very expensive! 

So as soon as the port is ready, I will begin treatments.  If my body handles chemo like the last time, then I will do just fine…I just pray that it works on every single growth – those we can see and those we can’t.   My stomach begins flipping just thinking about chemo, and I can even smell the drugs from my memory! 

Since things aren’t starting until Monday at the earliest, I am going to stay here in Paradise a while longer – maybe returning on Saturday or Sunday.

On a different note, you’ll never guess (unless I’ve already told you) who played with Kai at the Burbank airport during a flight delay…Barry Bonds!  I chatted with him for about 15 minutes and took a picture with him.  I’ll post that soon – I don’t have a way to get the picture off my camera here at my parent’s house.   🙂  Fun, huh?

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July 14th 2008

Results of Doctor’s Appointment today…

Hey Everyone,

I know you are anxious to know what the doctor said today.  I’ll start with the good news.

The good news is that there is no tumor on the chest wall.  Sol read the report wrong and there isn’t anything new there.  Yay!

Now the bad news…Sol originally thought all of the suspicious growths were less than a centimeter, but there is one in my liver that is 4 cm.  For it to become that large in only three months means that it is growing really fast.  There are multiple growths on my right lung – one near the top and some scattered toward the bottom.   The doctor said that they are all operable.  He also believes that they are all most likely angiosarcoma, but without a biopsy, it’s hard to be 100% certain.  He is concerned that a biopsy might cause internal bleeding, but is going to ask the specialists about that.  He has a call into the sarcoma specialist that I was referred to back in April to ask his opinion on the next step for me and the recommended treatment path.  We should hear back by Wednesday, but chemo has been mentioned along with clinical trials.  Now my cancer is classified as stage 4 because it has spread outside of its original location to multiple other tissues.  Stage 4 sounds so terrible, I can’t hardly say it.

With that said,  I have booked a flight to see my family.  I want to go see my sister and her little baby girl before I start treatment and can’t go anywhere.  I am bringing Kai with me and will stay as long as I can.  I do not have a return flight booked, but will book it as soon as they call me and tell me it’s time to start treatment.  Sometimes you just want your mommy and daddy!  Know what I mean?

I am so scared and in a state of shock.  I am praying that when they go in to biopsy it (if they do) that there will be nothing there!  I am praying for a miracle and would ask that you join me.  May the Lord be praised in the midst of my pain and suffering.

Love,

Monica

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July 11th 2008

More Clarification on Report

Sol let me in on more specifics about the report (he didn’t print it, so I haven’t seen it).  He said that there was reports of “malignant neoplasm” on the chest wall.  It also had the word recurrence.  That means that there is some recurrence of cancer near the original site.  In addition, the report said that suspicious new growths were found on the lungs and liver.  Each growth was really small, between 3-8 mm.  That’s the goal of these…catch it early if it does come back, right?   

Only the Lord knows the outcome, but please pray that when they go in for further review that they will find nothing.  Please pray for complete healing!  This is a real blow to us and we are struggling to find meaning and peace in it all.  Pray for us as we wait the weekend out.  We’ll keep you updated.

Love,

The Rodriguez Family

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July 11th 2008

Update

 

We got a call back from the oncologist’s office.  His assistant told us that the oncologist has made an appointment to look at all the slides with the radiologist to figure out if the “suspicious” growths are really something to worry about.  I will not know anything until Monday morning.  This weekend is going to feel like an eternity!

Thank you for your continued prayers and your support.  I’ll let you know when I know anything.

Love,
Monica

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July 11th 2008

PLEASE, PLEASE, PLEASE PRAY!!!

Please pray as we wait for the doctor to call back about my CT scan results.  Sol saw the report, and it didn’t look good.  He called the oncologist and is waiting for clarification of what “suspicious new growths” means.  Will post when we hear from him.  For now, please pray for healing and that it is nothing serious!!!  Pray for peace in the midst of confusion and fear!!!

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