July 21st 2008 10:20 pm

I have a Power Port appointment!

Well, today was a really long and trying day! But in the end, we can celebrate. I’m getting the Power Port!

After waiting for my doctor’s office to call me about the authorization, I finally called them. The authorization to change facilities had gone through, but it hadn’t been sent to the hospital yet and no one had called me to let me know. She said she would fax it right away to the hospital and then they would call me with an appointment time. I waited about 30 minutes and then called the hospital myself. The scheduler wasn’t there when the doctor’s office called, so she didn’t even know that they had faxed the authorization. She got the auth and set me up for the appointment right there on the phone. If I hadn’t called, I might not have heard anything today. It is so frustrating to have to keep on top of everything, but I guess necessary to keep things moving.

I’ve heard that you need to be on top of things and be your own advocate many times, but can’t it ever be easy and right the first time??? I can imagine many people would just accept what is told to them and that makes me sad because they aren’t getting what they deserve and sometimes need!

So, my appointment is at 10:00 on Wednesday morning. I am so glad to have the appointment, but it is on the ONLY day that I had anything planned ALL summer. I was going to be heading to Angels Stadium for a mid-day baseball game. I won tickets at the Relay for Life back in June, and now I can’t go. I’m bummed! Instead I’ll be at the hospital for approximately 5 hours. I’ll get over it eventually! 😉

A friend told us that we are “Rolling with the Punches” to which Sol replied, “Yeah, but we’re getting pretty beat up.” That’s pretty much how we feel, but our God is bigger than this trial, and He will carry us through! Thank you for all your prayers. Things are moving in the right direction and I know that your prayers have played a major role!

Love,

Monica

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