May 8th 2009 09:59 am

What to Post

I tried to write this post for an hour last night, but I didn’t quite know what to write.  I’ve rewritten this post at least five times already. 

Monica is not doing well.  She still has incredible pain, but the pain meds do a good job of masking it for small pockets of time where she seems happy.  She doesn’t sleep for more than about thirty minutes at a time, but she thinks it has been hours.  The drugs cause her to lose focus so quickly that any conversation of more than about 1 or 2 minutes drifts to something random.  At least she has a good sense of humor about it.  The other day she was scolding one of her students… it’s almost like she’s halucinating.  When we asked her who “Alex” was, she realized what she had just said and started laughing.  Sometimes it’s funny, sometimes it’s sad.

She got another blood test yesterday, and we have to call the sarcoma specialist’s office today to see if the results make her eligible for the clinical trial.  In the meantime, her breathing has become really shallow and she always feels like she’s short of breath.  We’re going to find out if she needs an oxygen tank.  The big event for the day will be to give her a shower.  Hopefully that will help her feel more comfortable.  

Thanks to our friend Heather.  Monica hasn’t been eating much, but she has been craving special things.  One of those things is pizza from our favorite pizza place:  Me’n’Ed’s.  Me’n’Ed’s is a Fresno restaurant, but a couple of them have opened up in Orange county somewhere.  Heather called them and explained Monica’s story, and they have decided to send a pizza and a calzone all the way to Whittier!

3 Comments »

3 Responses to “What to Post”

  1. wendideetz on 08 May 2009 at 10:11 am #

    Sol, I am so proud of the courage and love and tenacity you’re demonstrating through this unimaginably challenging time. Of course, we are all deeply concerned about Monica, but I hope you know that our prayers and thoughts and support are with you, too. You’re all fighting this illness – and I’m sure none of us (Monica included) could imagine having a better partner to go through this with. I have always had so much love and respect for who you are, for the love that you and Monica share & for the life you’ve built together. I know you know what a blessing it is to have unconditional, deep love like that (I hope you know what a blessing you are to her) and that it helps sustain you through the hard moments.

    If there is anything I can do all the way from here, please please let me know.

  2. karenanslinger on 08 May 2009 at 11:24 am #

    Sol & Monica~ My heart is with you at this time. I know what it’s like to watch someone you love be in so much pain and I can only imagine that you are both struggling to remain strong in the face of this. I’m so glad that there are so many people around supporting you and loving you, near and far away. I hope that in the midst of the chaos, you have a chance to just sit and enjoy quiet time together, just the two of you (or the three of you!) to cherish and be rejuvenated by the Love that brought you together. I am thinking of you and praying for you contstantly and waiting eagerly for the post entitled “It’s a Miracle!” 🙂 You are an inspiration and a reminder to me of what is truly important in life – faith, hope and love.

  3. MaryAnn on 08 May 2009 at 4:17 pm #

    We want to echo “wendideetz” on hoping you know what a blessing you are to Monica, and how honored we are to know such an awesome couple that displays the love of our Saviour through their love for each other. We always use you two as an example of a marriage bound in Christ.

    We love you and are praying for you all (Sol, Monica, Kai, and family and friends). Looking forward to giving you hugs tomorrow. We almost brought a Me N Ed’s pizza, glad to see that was taken care of! 🙂

    Kelly and MaryAnn

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