May 6th 2009 07:44 pm

We’re Home

Well, we’re home.  Monica had a really long, taxing day today, but I am so proud of her.  The doctors may not be very optomistic, but she is not giving up!  She used all the strength she had to climb stairs, bump along on the freeways, get poked and prodded more; and all this after very little sleep last night.  Her feet and legs are very swollen from all the IV fluids, so it was even more uncomfortable.  Monica’s mom stayed with her last night and confirmed that she was up every 30 to 45 minutes.  I wasn’t exaggerating.  For some reason she wakes up at night feeling like she needs to go to the restroom, though she can’t go (if we hadn’t already mentioned, to top it off Monica developed a urinary tract infection in the hospital!)   🙁   She came home and laid on her wonderful bed and propped her feet up.  She was asleep in about 30 seconds.  I hope she gets some decent rest.

Coming home was full of mixed emotions.  It’s nice to be home, but  I’m concerned about being able to manage Monica’s pain adequately.  It’s also “Grand Central Station” here with all the family and Kai being in one place.  We’re getting a hotel room for a few people so that should help, but it’s still crowded and messy so I just need to take a deep breath and focus on what’s important. 

The sarcoma specialist’s office wants to enroll her in a clinical trial for a new drug, so there’s a glimmer of hope.  She has to get a series of tests right away though, because she could be excluded if the levels of enzymes in her liver are too high (which they are right now; pray that they will go down by the time she gets the next blood test tomorrow).  If she is excluded from the trial drug, they say there are still a few chemos she can try, but that in her present condition it could be very hard on her.  The cancer (sarcoma) has spread in her liver, lungs, spine, and skin.  The largest tumor is in her liver and is now 22cm (almost 9 inches).  This is the tumor that is causing the most pain.  Imagine trying to shove a football in your abdomen…  The tumors in her spine are very painful as well.

There is so much to write that I’m having trouble keeping all my thoughts linear.  I’ll write more soon. 

 

God bless.

1 Comment »

One Response to “We’re Home”

  1. rico on 06 May 2009 at 8:11 pm #

    i love you guys!

    ive been checking the twitter a couple of times a day. i refuse to get one of my own though. im a rebel

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