March 5th 2009 09:56 pm

Dr. Appointment Notes…

The first thing that they said was that I am severely anemic and will need to have a blood transfusion tomorrow.  So even though I was having the shots, my red blood cell numbers went down.  I started crying.  I’ve never had a transfusion before and got very scared.  I think it’s really strange to have someone else’s blood pumped into my body.  I know it happens everyday, but it is still scary!  They are still going to give me the shots, but they raised the dose.

Then they talked about what’s next.  Sol had done some research (my wonderful husband) and found this drug (can’t remember the name) that showed promise in a few cases of angiosarcoma patients.  Not all, but I guess it’s worth a shot if it helped in a few.  It seems like every angiosarcoma patient is different and this disease behaves differently in each person who has it.  After looking at the research that Sol brought in, and staying late at the office last night researching what do to next, the doctor decided that because the side-effects were easier with the one Sol brought information in for, that we would start with that on Monday.  I will go once a week for three weeks, then have a week off.  If my blood count isn’t handling it, then I will go two weeks on and one week off.  I guess we’ll see.

I really want to get out to Washington D.C. to see my older sister, Karen, sometime this month or the beginning of next, but I don’t know how that’s going to work out now.  Please pray that it will still happen!  I have been wanting to do this for months…

So tomorrow is a long day.  I go to the hospital around 8:00 am and am there for 6 hours as they put 2 units of blood into my body.  I don’t know if they’ll be able to use the port…I hope so, but I don’t know.  They drew blood from my arm today in order to match the right blood to me, so that it’s ready when I get there in the morning.  

I will probably be sleeping most of the time, but Martha will be there with me.  I’m scared, but know that this is one more step on the way to recovery!  Fight, fight, fight!  I think I need a fight song like the Universities!  😉

Blessings and Peace,


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